Comments on: April 2009: Moyamoya Disease

By: Vi da

Vi da — Thu, 27 Oct 2011 09:36:01 +0000

I am a 40 year old female, in good mental and physical state of being. Recently I had two strokes at once and was hospitalized. I have also have von willebrand and lupus. While in the hospital undergoing several tests, on my medical report it implies possible unilateral moyamoya disease. What can I do to make sure I am in the right hands in the medical field? and that something like this does not get over looked, are there questions or concerns I should be asking these doctors? Your help would be greatly appreciated. Also the MRA had shown I have had multiple strokes prior to this last episode.

By: Wanda Hunt

Wanda Hunt — Wed, 06 Apr 2011 13:10:20 +0000

Would love information on support groups and blogs on moyamoya. I was diagnosed on Christmas Day in 2010 after I suffered a stroke. Had another stroke on March 26, 2011.

By: Moyamoya: Puff of Smoke « MarbleRoad’s Blog: Rare Diseases and Disorders; Public Health; and National Service

Thu, 09 Jul 2009 18:47:57 +0000

[...] Blogs on Moyamoya: MoyaMoyaInfo Lost on the Floor: tales of a (new) nurse Neurosurgical FOCUS Readers’ Forum: April 2009 Podcast surgical treatment of moyamoya syndrome in patients with sickle cell anemia Life’s a Journey, [...]